Wednesday, October 2, 2013

and so here we are into October.

I remember writing on my last journal on Friday that the rollator was made for walking but my legs were not, well a bit of a misquote there I think it should have read "But my Body was not" as I will tell you after welcoming you all to...................
I ended Fridays Journal saying that I was going to get dinner ready for Friday evening, well I had dinner about 7.00 pm and then from 8.00 until about 9.30 I spent between the lounge and the bathroom vomiting and bringing my dinner back up (not a pretty sight), I felt so ill that I even had to phone gervase and he came round to be with me for a couple of hours, I let Pauline know and she and Gordon wanted to come down but I said that Gervase was coming round, and we would phone if it got any worse and let them know.

Anyway this went on for about 2 hours until it started to settle down at about 10.00 ish, at which time I thought that Gervase had spent far to much time with me and that he needed to get back to Leanne , as the poor lad had not even had time to have his evening meal. so after much nagging from me he went back home after making me promise to phone him if it started up again, anyway once Gervase had gone I phoned Pauline and gordon and then went off to bed feeling very old and fragile.
 It was a very restless night,s sleep and when I eventually got off to a decent sleep, I slept through until about 9.00 am when I received a text from Pauline to see how I was. The good thing about it was that I was not feeling "Nauseous" but the muscles in my lower chest and stomach were really Sore and Painful, I had certainly put some strain on them last night, so It was going to be a couple of days of rest for me, anyway I made a cup of Twinings fruit tea 

and had a small bowl of cereal for breakfast and then  settled down to rest and watch some TV. I also took a couple of co-codamol which helped to ease the pain and soreness.

well Saturday passed very uneventful, I kept my food intake down to a minimum and upped my fluid intake to stay hydrated and got through Saturday with no more bouts of sickness.
Pauline and Gordon came down to see me and to make sure that I was OK and to see if I needed to have the bathroom cleaned or anything, but that was OK, They also brought me my paper and some milk with them, anyway they stayed for an hour or so and had a chat and then made there way back to Waterlooville, Gervase phone to see If I wanted him to come round but I said that was not necessary as I was going to spend the day watching Movies. and so that is how my day went, I had a couple of scrambled eggs on a slice of toast for lunch and some chicken soup in the evening and also a complan, and then had an early night. at least I managed to keep my food down on Saturday and was feeling slightly better by saturday night.

now on Reflection I think that I had just really pushed my body to the limit over the previous few days and was now paying the penalty for my stupidity. I had walked far to much in such a short period of time and also was eating far to much as well. Through all the trauma over the last 2 years with the myositis diagnosis and the chronic dysphagia and the slow rate of improvement it was easy to forget that I was also diagnosed with a twisted stomach (Cup and spill stomach) and I need also to take that into account as well.

I slept pretty well on Saturday night and Sunday was much the same as Saturday, I was feeling better but on reflection I have decided that I need to eat 2 smaller meals in a day instead of one larger one so that is what I am going to do, Gervase came round and we went out in his car and did a little bit of shopping, we went to Marks and Spencers where I got  6 mini meals for Sunday, Monday and Tuesday, and then we went up to sainsburys where Gervase did his shopping I took it very easy with only a small amount of walking.  
M&S Mini Meals for one
So apart from shopping I spent most of the day recovering from the last aches and Pains from Friday, Friday night I slept pretty well and got up at about 9.00 on Monday.

Monday was again a day of rest and taking it easy, I am still making sure that I am taking it easy and pacing myself better throughout the day. I walked round to get my paper from the new spar shop and the lad that served me was on his mobile phone and did not stop talking even when taking the money for the paper, How rude is that, I certainly wont be shopping there again 
The worst shopping experience ever, really rubbish
anyway spoke to Pauline and Gordon and then just spent the day pottering around the house and catching up on episodes of Bonanza and Gunsmoke. Tuesday was also spent much the same way except on tuesday evening I went to see Gervase and leanne for a couple of hours, Leanne,s dad Dave was there as well and gave me a lift back home about 9.15, I am certainly feeling a lot better now but that was really a rubbishy last few day,s.

So Now we are at Wednesday and it is shopping day with Pauline. having two mini meals a day rather than one large meal has certainly been beneficial to my digestive system, so I will carry on with that regime at the moment, I will contact my speech therapist in the next few weeks and have a chat with her as it is getting near the time when they will need to do a follow up  Endoscopy to see if there has been any change in my cup and spill stomach.

Pauline and Gordon arrive about 11.00 and while Pauline and I go down to the city centre Gordon will spend a couple of hours doing my weekly flat clean.
Get a move on Gordon
Once down town we go to the bank and then boots the chemist, before heading into M&S to get 8 mini meals to take me through until Sunday, we then go to Morrisons in the Victory Retail Park to get the main shopping before getting a taxi back home.
Morrisons Victory retail Park. Portsmouth
once back home, we get the shopping put away and then we have a sandwich and a coffee for lunch before Gordon and Pauline head back home about 3.00. so that is the end of another day, suffice to say that the Rollator stayed at home today and I took the wheelchair, I have certainly learn a valuable lesson over the last few days and that is that with this Myositis, no matter how well you feel take it easy and do not overdo things as it is always lurking in the background ready to pounce and give you a reminder.

Anyway I am feeling almost back to norma again now and I really think the 2 mini meals a day is benefitting me so we will see how that goes, and certainly a bigger variation in my diet so hopefully less laxatives, but thats another story. So Until my next Journal I will say a fond goodbye.

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