Monday, July 28, 2014

The Return of my Daily Journal.

And so here I am back again after a gap of nearly Ten months and here I come riding back into your lives on a white charger, well it has been an interesting few months which I will not bore you with apart to say that I had a few up,s and downs with tapering my Prednisolone but at least I have now got new glasses and a larger screen computer so hopefully get back to what i do best and that is boring you all silly .

So where do I start,  I am now down to 2.5 mg of Prednisolone daily ( 5 mg taken alternate days} and that was a journey and a half to get to this from 5 mg daily (10 mg taken alternate days) but fingers crossed i am now finding it easier but a big difference in my energy levels, they are so much lower on this low dose.

Anyway I have got to where my Neurologist wants me to be, and now all I have to do is to work on my weight, I am just under 13 stone which is not helping with my Knees and with my weak muscles in my upper legs and thigh,s, My Neurologist "Dr Gibb" wants me to be at 11 stone unfortunately that is not going to happen so I am going to try to get to 12 stone and see where we go from there but I think Jogging is out of the question.

So that just about brings us up to date on the health side of things so we start with today. as usual it was a case of waking up not knowing if the heatwave we are in the middle of was going to continue again or not, it was another night of restless sleep as it is so hot and humid here in the UK so wait to see what the weather forecast is for today
Well it looks like it is another hot day ahead and so it seems the Fan will be used to its maximum again today, anyway time for breakfast so that is a coffee with a bowl of Special K with red berries followed by the obligatory 4 pitted prunes, I have found that having 4 prune,s in the morning with my breakfast can reduce my laxative ( Latulose) from twice a day to just once in the evening.

Once I had finished Breakfast I send the morning text to Pauline, and she phones me back to make sure that all is Ok, Pauline and Gordon  are off up to Waterlooville town centre to do some shopping and asked if there is anything I needed but all I have to get today is Milk and the daily Paper, as I went shopping with Gervase yesterday so i have everything I need until Pauline takes me shopping down to Portsmouth city centre on Wednesday.
Waterlooville  Town Centre.
Once I have spoken to Pauline I check out the myositis support groups on Facebook and then I get myself ready and go down to winter road with the Rollator to get my Daily paper and a couple of pints of Milk. While I am out I take a walk down Devonshire avenue and around the block back home, which is my exercise for the day. it takes about 20 to 30 minutes and the good thing about using a rollator it has a seat so I can sit down if required, however it is a lot less humid today so it was not to bad on the breathing
Approach to Devonshire avenue from Winter Road
Winter Road looking north to the shops.
Once i am back home I have a sit down and a coffee and then go out and dead head the Rose bush and the two hanging baskets, there are still a lot of buds on them to bloom yet, They are at the front of my flat and looks very pretty, there are a lot of hanging Baskets in the houses down our street.

The Rose bush is doing well this year.

one of my Hanging Baskets

My other Hanging Basket.
Once I had done that it was time for some lunch so a nice Corned beef Sandwich and then a lie down for an hour until 3.00 when it is time to get the computer ready, make a coffee and then on to writing the daily journal before getting dinner ready for tonight, Tonight it will be a sea bass fillet with New Potatoes, Broccoli and a cauliflower cheese, all home made from fresh ingredients.

well that is about it for today, not the most exciting of days but an enjoyable one all the same so I will say bye Bye to you all until tomorrow, and It is so good to be back writing the Journal, it will probably take a few days to get back into the swing of things.


  1. Howdy Frank!
    Sounds like quite a nice day, despite the weather. Yay you!!
    LOVE your beautiful roses and hanging baskets. Nice green-thumb!
    Have a great day and bless your heart.

  2. YAY! It's about flipping time you start this journal again. Have missed it Frank!

  3. I loved reading about your "ordinary/extraordinary" life in Portsmouth and seeing the photos accompanying your descriptions. I'd be so happy to be able to do a 20-min walk around the locale. The corn beef got a fair work-out! Oh ... and just to mention, I can't see the sun in the sky or any shadows ;)