Showing posts with label Support Groups. Show all posts
Showing posts with label Support Groups. Show all posts

Monday, August 18, 2014

Where did Saturday and Sunday Go

So Here we are on Monday, Where did the weekend go to, I did very little apart from sleeping, resting and some graphic work on the computer, and before you know it we are at Monday and the start of another week so all I can say is.

WELCOME TO 

Saturday

Turning the clock back to Saturday Morning. Not a bad nights sleep on Friday night, woke a couple of times during the night but was up by 9.00 am. Spoke to Pauline and had breakfast and then just checked on Facebook, apart from that not a lot happening, so a nice restful morning. My Son Gervase phoned to say he will be coming round about lunchtime as he is going to the first home game of the season  for Portsmouth Football Club at Fratton Park and they are having a fans fun day in the stadium car park so he will take me over to see what is happening, as it is within Rollator distance to where I live.
Gervase arrives at about 1.15 and we have a chat and then I walk with the Rollator over to Fratton Park with him to see what is going on.


Fratton Park from the Main Car Park.

Some of the fans at the Fun Day
The Pompey Bus at the Fun Day
The Pompey Shop, Fratton Park
It was not a bad turn out at the Fun Day, and when you think that 2 years ago "Pompey" were on the brink of Liquidation and going out of the English football league after getting into so much debt after some successful years in the Premier league and winning the FA Cup.
It was only through the supporters ands the Pompey Supporters Trust that we survived in league 2 of the football league and is now owned by the supporters.
Pompey won the match against Cambridge 2 - 1, so a good start to the season.

Play up Pompey
After we have been at the Fun day we make Our way back home, we were only out for about 40 minutes once indoors I get myself some lunch ready and Gervase heads back over to Fratton Park to watch the match, as he is a season ticket holder, We have been supporters of Pompey for many years, I remember my Father Taking me to fratton park when I was about 6 or 7 years of age, That would have been in about 1949/1950 and I have been supporting them ever since, through all the bad and good times, I started taking Gervase to Fratton Park when he was about 9 years of age in about 1990.
 After the Match Gervase came in and we had a nice chat about the match, as I listened to it on the radio and then he made his way back home to Leanne, and I settled down to watch some TV and do a bit of Graphic work and then dinner about 7.30 and bedtime at about 10.00, so all in all a good Saturday.

Sunday 

Sunday started with a Thump in more ways than one, I had woken at about 6.30 and as usual I go and make a coffee to take back to bed, Turn on the Radio and Open the bedroom Window to let some fresh air into the room as I get very Dehydrated during the night, and being in a ground floor flat I cannot have windows open at night for obvious reasons, Anyway I must have dozed off because the next thing I know I am awaken by next doors Kitten leaping on to me from the window sill.

I am always being pestered by Cats
Anyway that was the way my day started, Once i had got up and gave the Kitten from next door a drink of water and opened the back door he was happy, he just went up to the end of my courtyard and sat there licking himself and looking at me as if to say " Well that got you out of bed" after that shock to the system I needed a good strong Coffee.

My goodness I needed That 
Well once I had got my self sorted I got some breakfast, Text Pauline to let her know that all was ok with me, Pauline phones back and we have a chat and then I go and weigh myself before getting washed and dressed and settling down to check out Facebook.

Nothing wrong with my weight.
Well once I had got myself sorted It was time to head of down to the paper shop and get my daily Paper, I met one of my neighbours out taking his dogs for a walk down the Park, so I headed of down to the park  with my rollator, we had a nice chat but my muscles soon got tired so after about twenty minutes I headed back home, but it was an enjoyable half hour .

Out with my neighbour with his dogs
Once back home I just spent the rest of the day Resting and listening to the radio.
I got dinner about 7.30 Pm a nice Moussaka,  and then spent the rest of the evening in the recliner watching a couple of recorded episodes of "Highway To heaven"

Highway to heaven with Michael Landon and Victor French.
And so ends Sunday, off to bed at about 10.30 last night and slept through pretty well until this morning

Monday

Well This morning started pretty well, It is a lot cooler her on the coast today, apparently we have a cold front moving in from Scandinavia so that will make life a lot more comfortable for me and my walking, I find it hard going walking when it is to hot and humid, a cool breeze makes it far more comfortable for me.

As I said in Fridays Journal, Pauline had made me a Bib for when I am eating.

Franks Bib for mealtimes.
The reason behind Pauline,s needlework skills is that she does all my washing and ironing for me, {She takes The washing home on Wednesdays after she takes me shopping and Gordon takes it on Friday when he goes home to Pauline after Helping me with my Bath etc. And needless to say Wednesday,s washing is returned all clean and ironed on a Friday and the same for Friday,s on a Wednesday, } Anyway as I have to have a lot of liquid with my food due to my swallowing not being 100% and also that my Hand, Mouth and Cutlery co-ordination is not 100% I tend to get food down the front of my shirt, and I think Pauline is getting fed up of having so many shirts to wash and iron, I am all right with Sandwiches, Drinks, ice-cream, cakes etc but Meals are a different matter.

Calm down Pauline
Anyway one I had had my breakfast of cereal (Wearing my posh Bib), I go and get remedy and then head off down to get my Morning Paper, In take a walk around the block and that is enough for me so back indoors to get a coffee and sit and read the Paper and do then crosswords.

Well Today has been taken up on writing this journal and apart from having lunch , I have not done much else, apart from looking into setting up a fun Global Myositis Awareness website, Just turning ideas over in my head at the moment.

Anyway it is now 5.00pm and it is time I got this Journal posted so  as there is not a lot happening today So Until the next Journal on Thursday I will say..................

Monday, August 11, 2014

A Storm, A super moon, and Sunshine.

Welcome To Monday



Well after the tail end of Hurricane Bertha, and the super moon last night, all we need now is a visitor from outer space and the start of my week will be complete.
My Dream came true

So here we are on A Monday Morning, but Let me tell you first of the events of Yesterday. As you probably Know we were bracing ourself for the arrival of the tail end of Hurricane Bertha that has been tracking across the atlantic from the Caribbean
Here Comes a subdued Bertha
true to form the Storm reaches the western shores of England and Wales, late on Saturday Night and travels eastwards  reaching us here in Portsmouth in the early hours of Sunday Morning. there were several torrential downpour,s and Thunderstorms to begin with and some very high gale force winds which caused some very high waves along Southsea sea Front.
Southsea Promenade early Sunday Morning, Photo By Mike Walker.
Published by the Portsmouth Evening News.
Photograph by Helen Yates
By lunchtime the rain had cleared away Eastwards and Northwards, but the strong winds remained, To say we were lucky here is an understatement as most of the UK got it a lot worse than we did with Mini Tornadoes, Flash Floods etc, I think we were spared the worst as we are shielded by the Isle of Wight to the South and Portsdown hill and the Southdown,s to the North and also we are in a natural bay along the South Coast.

Showing Portsmouth in Relation to the Isle of Wight and the coast line
Showing Portsmouth in relation to France and the English Channel.
However the Isle of wight got some really heavy storms as did some of the villages inland from Portsmouth but the storm affected Wales and the Midlands and the North of England far worse than we did, also the east coast got hit quite badly as well.
The weather cleared  and had settled down a little bit in the afternoon so my Son Gervase was able to come and take me shopping at 2.00 pm, we went to Sainsbury,s up at Farlington,
There were some heavy gusts of wind along the dual carriage on the way up to Farlington, but not to bad, anyway we were back home by 4.30 so after that it was a nice evening of relaxing and watching the TV, until bed time at 11.00,
Sainsbury,s at Farlington
As I said earlier we were back home by 4.30 so I put the shopping away and made a coffee and sat down for a chat with Gervase, He left about 5.30 to head home to Leanne and I get my Dinner cooked, a nice Steak Burger with Broccoli, Sprouts, Potato and Gravy, followed by Tropical fruit salad in Jelly ( which Pauline made for me) and then an evening of Facebook and TV until bed at 11.00.

There was also a full moon last night, what they call a Super Moon, apparently it is the nearest it has been to the earth for a generation and the next time is in 20 years time, Perhaps this has something to do with the weather ???
The Moon above the Houses
I went to take a picture with my Phone, it is not that good as too much light in the city but at least you can see it
Its Time for Bed
Well I had a decent nights sleep and woke at 6.00 am this morning feeling not to bad, I know I am Ok as I got out of bed without falling on my butt, so that was a bonus. anyway as is the norm at the moment, I make a coffee and just do a quick check on Facebook on the Laptop.

I Want My @@*&@@ Breakfast
1 hour later I am still there I blame the Australians. On the Australasian myositis support group, so I wrote a little poem and put on there this morning for them.

For Amber and Barry and all those people on the Australasian Support Group.
 Once I had managed to drag myself away from Facebook, I get myself some Breakfast of Wheatabix and the obligatory Four  prunes and then get washed and dressed, before going back to Facebook to check out the other Global Myositis Support Groups,

There are 4 Myositis support groups all together and there are links to them on the left hand side of this blog under Facebook Groups, the 4 groups are.
  • Myositis support and Understanding (USA Based)
  • Myositis Friends support Group  (UK Based)
  • Myositis Support Australasia. (Australian Based)
  • Myositis-Canada. (Canada Based)

These 4 Groups are closed groups and are for People that have one of the forms of "Myositis" or who is affected by Myositis i.e. Spouse, carer, relative, medical professionals, Although based in one of the 4 countries as listed that are open to people from all over the world, and because of the time differences around the Globe, they are truly a global 24 hour a day support group.

There are other myositis Facebook groups such as the Ramblers KIT Group plus others there are also links to those on the left hand side of this blog under Facebook Groups.

Anyway once I have posted and checked out all the Myositis sites I then go and get my daily paper down the local shop and have a walk around the block on the way home, I am only out for about 20 minutes, as the wind is still very strong, once back home it is a nice coffee and settle down to read the paper and do the crossword,s before going for a lie down for 30 minutes before getting some lunch at 1.00 lunch time.
Going to Settle down with the paper
today I am having some John West Canned Smoked Mackerel fillets with Toast for my Lunch.
These are really nice on Toast.

Well that was very tasty, healthy and filling, so now to settle down to watch the news and get this Journal started. as it is now 1,45.

Now it is 3,30 and I am just finishing the Journal so now to get it Posted and then start getting myself sorted and decide what to have for dinner tonight, something with a jacket Potato I think, anyway that is about it for today, the rain has kept off, but the wind is getting stronger, so until tomorrow I will say .............