Friday, September 6, 2013

Its another Freaky Friday.

So here we are on another Freaky Friday. It seems strange not settling down to write my journal on a daily basis but hopefully it will not be to long before I get the new computer and then we can get back to writing it daily again, as I do miss not writing it every day.

Writing a daily Journal
well yesterday was an interesting day as I had my Appointment with my Neurologist Dr Gibb up at the Queen Alexandra Hospital (QA) at Cosham. my appointment was for 11.30 so I booked a taxi for 11.00 as it is about a 20 minute journey from here in Southsea up to the QA. I was meeting Pauline there, as she was getting a bus from Waterlooville which is where she and Gordon have moved to, so she is nearer to the QA than I am.
Anyway I am meeting Pauline at the North Entrance at the QA as that is the easiest entrance to the Outpatients department.

North Entrance to the Queen Alexandra Hospital Cosham.
Well I get to the QA at about 11.20 ish and Pauline,s bus arrives about the same time. The taxi drops me off at the North Entrance but Pauline has to get off at the South Entrance and walk up the hill to the north entrance, anyway we meet up and go in to report to reception to let them know I have arrived.

Outpatient Department  Reception

When we report to reception I am informed that Dr Gibb is running about 30 minutes late in actual fact My appointment was for 11.30 and Dr Gibb calls me in at about 12.50 so he is actually running an hour and twenty minutes late still never mind, gives us time to read some out of date waiting room magazines, ( really should have brought a Newspaper or the iPad with Me.)
Waiting For Doctor Gibb
Once I was in with Dr Gibb we had a chat and all my Blood works have been coming back OK, over the last 6 months and all my downloads to the cardiology department from my Reveal Heart monitor have shown no repeat of the erratic heart beat over the last 16 months. I told him about the fatigue I have had since tapering down to the 10 mg of prednisolone on alternate days but he is reluctant to increase it and I am going to start on a daily multi-vitamin and see if that makes any difference.
 we discussed my Digestive/constipation issues in regard to my inability to digest some foods properly ie (beans, cabbage, cereal etc) due to my "Cup and Spill" stomach which was diagnosed after an endoscopy in 2010 and has been put into the background after being overshadowed by the onset and diagnosis of Dermatomyositis, so I am going to be taking a sachet of Fybogel every Morning to add more fibre to my diet so that  (along with the increased dose of Lactulose) in the evening should help with the constipation.

The Methotrexate is remaining at 15 mg on a Friday and the Folic acid is staying at 5 mg on a Monday. also the Lansoprazole is staying at a daily dose of  15 mg before breakfast and 15 mg before dinner . and the Prednisolone is staying at 10 mg on alternate days.
I said about the Ventolin Inhaler from the GP Dr Tyrrell that he prescribed to help with my breathing in this humid weather.

Ventolin Inhaler and the Aerochamber. 

I have  my yearly Pulmonary Function Test (PFT) scheduled for next Friday. and Dr gibb said that once he has the results of that  he will contact me with regard to on going treatment. hopefully the result of the PFT will not have changed over the past 12 months as the one last year and also in october 2011 was around the 80% to 85% which was acceptable.
Q: Did I pass the Pulmonary Function Test ?
well I must say that apart from the long wait in a very stuffy waiting room it was a very positive appointment, so now just the PFT on next Friday to get over and done with and then we will see where we go from there but feeling very positive as I said to Dr Gibb if it was not for the difficulty with the walking and the mobility of my arms I would be as fit as a fiddle, I wake up in the morning and feel like an 18 year old, get out of bed and feel like a 60 year old which on reflection is not to bad as I am 70 in 7 weeks time.
A positive appointment yesterday
Once we had finished with Dr Gibb me and Pauline headed down to the cafeteria on A level which is at the other end of the hospital where we had a cheese and ham toasted sandwich and a coffee each before going outside the South Entrance

Queen Alexandra Hospital Main entrance (South Entrance)

where I phoned for a taxi to take me home and Pauline waited for her bus back to Waterlooville. Pauline,s bus arrived before my Taxi so saw her safely on the bus.

Pauline,s bus arrives before my Taxi

Well there we are then, slept pretty well last night and had a decent day today, I am glad the weather is getting cooler as that does help, although it is still very humid, we had some rain during the night and also this morning but the sun returned this afternoon.
 It looks like the weather is certainly on the change for the week ahead but it could be worse I suppose/

so today has been a very quiet day of rest and TV for me, it is now almost 5.00 pm so I will get this journal finished and posted before watching Pointless on BBC 1 and then I will be having "Fish and chips for dinner before taking my Methotrexate
Yummy, Yummy Fish and Chips.

So until the next journal which will probably be On Monday I will say.....................

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