I am Knackered.

"Hi Ho", "Ho Ho",
its off to Frank,s I go,
I will get frankie working hard,
"Hi Ho", "Hi Ho"

This is probably the song "Slave Driver Pauline" was singing when she left home this morning.

Woke this morning about 6.30 am, not a bad nights sleep woke a couple of times during the night but all in all had a decent sleep. the weather is not that good this morning heavy rain and very overcast but hopefully it will clear up later on, Had breakfast at 8.00 am and carer came about  9.00. am. Pauline phoned at 9.30 to say that as it is raining, we would sort out a couple of cupboards in the back room rather than go down town , and she would also go into the doctors and pick up my Prescriptions and drop into the chemist on the way to me. and that she would get to me about 11.30 am.

Pauline arrives about 11.30 and we have a quick walk round to Tesco in Goldsmith Avenue as pauline is feeling hungry and wants a sandwich, anyway gets that and then back home for a coffee, Pauline thinks it will be a good idea to sort out one of the cupboards in the back room "Shush don't tell her but That is a good idea" anyway I sit on the bed and Pauline gets the stuff out of the cupboard and I sort through it, it takes a couple of hours and towards the end I am starting to feel tired and the arms and shoulders are aching, but I can rest this afternoon so not to bad,

Well that was a good couple of hours spent, sorted out a bag of books for pauline to take to the charity shop, found a bag of craft materials for another charity and a lot of paper etc for the recycling bin and also now have 2 empty shelves to fill.

It is now time for a coffee and a rest before my son Gervase visits this evening at 6.30, so until tomorrow, tatty bye.

It's a lovely day today.

On the Computer

well here we are again,back on the computer getting bored and producing cartoon pictures, still it passes the time and keeps me from going round the bend. Just reduced the Prednisolone down to 20 mg per day from today so hopefully will not find I lose to much energy or get to much joint pain.

Carer Grooming me ???

Well its been a good day today so far, slept fairly well last night and got up this morning about 7.45. had breakfast and waited for carer to arrive to get me groomed for the day, The regular carer is on holiday this week so it is a different carer every day so far this week and today she didn't arrive until 10.45 still better late than never I suppose.

A short walk to Tesco

Decided that seeing as it is a nice bright day with a slight breeze I would see if I could take a short walk down the road with my cane, as the breathing seems to be a lot easier today ( Its all to do with the humidity), anyway managed to go out for about 20 min,s ( round to Tesco and back) so not to bad and enjoyed that.

Doctor.

Phoned the doctor today as my Fresubin Drink has been left off of my repeat prescription sheet and I feel I still need that as long as I am on a puree diet, had a chat with the GP, and the Fresubin, has been put back on to the sheet so that is OK.

Wheelchair

Had a phone call from the Doctors secretary today re the wheelchair application, the form has gone in to the NHS, and should hear shortly, at the moment I have a wheelchair on loan from the Red Cross but that is only a temporary loan and I need something more permanent for the time being.






Not much more to say about today really, it has been a decent day for me so will now think about getting my dinner sorted and then plan out tomorrow,s agenda as Pauline will be round tomorrow and hopefully we may get out down town to the bank if the weather is nice,so until tomorrow Cheerio.

A Busy Tuesday

Hello one and all and welcome to another busy Tuesday, slept ok last night only woke twice between 10.30 pm and 6.30 am so pleased with that as it is going to be a busy morning. looked out the window and it is very grey and wet outside today, best place is going to be in bed i think, so think I will have breakfast in bed today and contemplate the day ahead, Feeling a bit of joint pain today, don't know if this is to do with the tapering down of the Prednisolone or the fact that I was bending over scrubbing out my dustbin yesterday, a bit of both I suspect.

Well had breakfast and up by 8.30 am, carer came at 9.15, so that is OK and pauline phoned to say she will be round at 10.40 and then we can go to Asda at the bridge centre at Fratton to do some shopping for the week, I will do what I did last week and leave the wheelchair at home and walk the store using the shopping trolley for support, if it get to much then I will go and sit for a while while pauline finishes the shopping..
Pauline comes and collects me and off we go to Asda.

Well we got to Asda OK and so far so good so go and get the trolley and off we go, me like a bull in a china shop and poor pauline trying to get me to "Take it easy" still we get into the store and get the shopping done , didn't take as long as last week but starting to feel tired and aching , especially in the shoulder and hip joints,will be glad to get home and sit down with a coffee but need to call in on the chemist first for a few essential supplies, at least its in the way home.



Well back home now, shopping unpacked, and having a well earned coffee, that was a busy and tiring, but enjoyable 1.5 hours but enough for today, think I will be taking it easy this afternoon, and then my son Gervase will be in to visit on his way home from work this evening so all in all a good day, but it is still raining. so now for a quick nap and then think about what to have for dinner, a couple of sea bream fillets with a white sauce and Mashed potato should go down well tonight. ( Purred of course), so until tomorrow. Tatty bye one and all.

A good day today.

Hello again and good morning/Afternoon. the weather in Portsmouth UK is not to bad today, it is sunny but with some cloud cover and with a light breeze. Temperature of 20 c and a 56% humidity.

Well not a bad night last night, after my trip out to B&Q with my son Gervase yesterday I was very tired and went to bed at 10.30 pm last night, woke about 11.30 and again  at 1.15 am and 2.30 am. so got up about 3.00 am and made a drink, went on facebook for 30 min,s and went back to bed about 4.00 am slept through until 6.30 am, and then until 8.00 am, so a better 2nd half of the night,.






Well must say I feel a lot more refreshed this morning so now to get Breakfast, then ready for the carer at 9.00 am, My sister will be down at 10.00 ready for my home care assessment at 10.30. a busy busy morning ahead.




10.45 and the social service lady turns up to do the assessment, She is part of the re-enablement team and is doing the assessment that should have been carried out 7 weeks ago, however at long last it is being carried out now.
After 1.5 hours of questions it looks, as expected that I will be moved from the re-enablement team to the Adult social care team at Portsmouth City Council, the panel apparently meets on Thursday so next week I should hear from Adult social care, which means they will then come round and do a at home assessment and decide what I do or do not need . ( What a Palaver this is turning out to be )

Well everyone has now gone and sanity returns to the household, what a morning that has been, at least I am now pleased that the social service care team is now responding, although a bit late,  so I think a nice puree sausage and mash for lunch and then a little bit of daytime TV to get myself back into some kind of normality.

so until tomorrow, adios amigo,s.

Its Sunday folks

Hello one and all another day dawns, Blue sky and sunshine , but the air is quite heavy today so need to use the inhaler later on I would think, however after a false start had a fairly decent night and woke about 7.30, so time for a coffee and then get up by 8.00 am and get  ready for the Carer, if one urns up today ?

Hooray, Carer turns up about 9.20 am, its one of the regulars so that is a relief, she said she wondered why I was not down with her for a visit yesterday, so I think that was probably a cock-up by the company yesterday.

Now that the carer has been I can get my breakfast sorted and then have a wander round the garden, noticed yesterday a lot of weeds starting to appear now that the Buddleia has been cut right back, still Gervase is coming today so we can go to B&Q and get some weed killer and have a go at the weeds

Anyway, had some puree porridge , for breakfast and then on to facebook to see who is around. must put some work into my "Myositis in Focus website " as I still have a lot of info to add and I am getting about 80 hits a day on it now so people are finding it and also finding it helpful according to the emails I receive.

Me in a tie ready to go out.

Just checked the time, it is 12.45 time to get some lunch, ( chicken soup I think) and then get changed. Gervase will be round about 2.00 pm and then we can go over to B&Q for the weed killer. it a nice feeling to get ready with shirt, tie etc to go out although it takes time to get ready, it is well worth the effort.

True to his word My son Gervase turns up at 2.00 pm so we get out the wheelchair and off we go to B&Q. its not to far from home, about a 10 min walk and it is a nice day so it is pleasant to be out in the fresh air,

My Son Gervase

Well we get to B&Q and it is not very busy so take a slow walk around, get the weed killer and a hosepipe for gervase as well, not many of the staff here now that I used to know when i worked here, but saw Bill, Janet and Betty, so had a nice chat with them and then make our way back home, not been out long about 1 hour 20 mins but that was long enough, so pleased with that.

When we get back home, gervase goes out to spray the weeds in the back garden, while I make a coffee and sit and watch, giving advice now and then LOL.

Well Gervase goes at 5.30 so I get myself dinner and then settle for a night in front of the TV, its been a good day today, and I enjoyed it, and looking forward to tuesday when I go out shopping to Asda with Pauline, well tomorrow I have the Social care home assessment tomorrow so that will be interesting, my sister Eileen will be coming down for that so will let you all know how that goes in tomorrows posting, so until then Tatty Bye.

Here we are again, Happy as can be

Hello again everyone and here we are again, another saturday arrives and with it the sunshine. It looks as though today and tomorrow are going to be nice and rain re-appearing on Monday. The temperature is a decent 20 c and 52% humidity so not to bad on the breathing, but for some reason I seem to have an excess of Acid Reflux today ( wonder if I can blame that on the weather ).

Got up about 8.15 am,( not a bad night last night but still woke up every couple of hours but then dozed off again so not to bad) but the carer failed to show this morning, I left it until about  11.30 am then phoned the company, only to be told that the carer came about 8.30 but I did not answer the door so he left a note ???. I told the girl that (a) I was up at 8.15 and that (b) no note was left through the door, her reply was that maybe I did not hear the door and maybe I picked up the note with the mail or paper and put it in the bin, to which I had to remind her that although I am 68 it is my muscles that are weak, not my brain or eye sight. I think that probably upset her because she put the phone down on me so I have had no face washed or Hair combed today .


Decided I would go for a short walk round to the local tesco express to get a Newspaper, as it will get me out of the house and give me some exercise, anyway just seen Chris, my neighbor who lives opposite and he said he would walk round with me , so that is good to have a bit of company and a chat, so if we do that then when I get back I can think about what to have for dinner.

Well Enjoyed the walk and the chat and now to get dinner, Think I will have puree roast Chicken Tonight with Mahed Potato, Brocolli, Cauliflower,Swede and Carrot, with plenty of chicken gravy and then settle down to watch the Nicholas Cage film " National Treasure " on BBC 1, Now " Where did I put that Chicken ? "

Well thats another Saturday over so until tomorrow,I will say have a good evening .

At last they listen

Good morning/afternoon one and all and so we reach another Friday and another 15 mg of Methotrexate. it seems that it has not given me the adverse effect of previous Fridays so perhaps I am getting used to it, but certainly as I reduce the Prednisolone I can feel that my energy levels are dropping just as the Neurologist said they would until the body starts to produce its own steroid. At least it gives me an excuse to have a doze in the armchair.!!

The weather is a lot more settled today , a bit of sunshine and some cloud but a lot better than yesterday,although we missed the flash flooding that they had in Dorset thank goodness, the air is a bit heavy today so not to good for the breathing




At Last they Listen

After discussions with my son yesterday evening I decided to phone adult social services again today to see about getting an assessment of my care needs in the home. As those of you who follow my blog know I have been asking about this for a few weeks now, I had the original assessment in hospital for my release home after diagnosis of DM, and was released home on the 25th May with a 5/6 week limited care plan, which was supposed to be reviewed after 6 weeks, This has not happened, however today I have had some success, I spoke to the department this morning and the phoned back and arranged to come and do an assessment in the home on Monday.

It was hard work and determination to convince them that my care needs had changed over the 13 week period that I had been at Home, My medication dosages had changed and so had my mobility, and with it my need,s anyway perhaps now we will get some results.










More positive news, Just phoned the Doctors and the blood test results for this week have come back Normal so that is a good result, so all in all a decent day today, just hope that I can soon get a decent nights sleep, as I am reluctant to go down the sleeping tablet route, I take enough med,s as it is and do not want to take more