Well here we are, starting July, does not seem like it is 6 weeks since I was released home from QA, Hospital at Cosham and 9 weeks since being admitted to Southampton General Hospital and being diagnosed with this crap condition.
Getting to Grips with Dermatomyositis is hard, having to rely on other people to help me do everyday tasks is what I find most difficult to come to terms with, My thanks really do go out to all the support and help I am receiving from family and friends.
My Dysphagia ( difficulty with swallowing) has not really improved much at this time although it is early days in the treatment so really cant expect to much at this moment in time, so puree meals are still the order of the day. Muscle weakness and immobility are still there although we are now getting into a treatment plan with the medication so hopefully we will see some improvement in the weeks ahead.
I have this week Reduced my Steroid,s from 40mg per day to 30mg per day ( bearing in mind 8 weeks ago I was on 60mg per day) and am starting to increase the Methotrexate fro 7.5mg per week to 15mg per week, this being phased in over a period of 6 weeks.
Because of the Metotrexate I have to have blood tests every week to keep a check on side effects and infections.
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